My baby Paul was born with a piece missing from his top lip. Later they told me he had a cleft lip and palate. He could not suck and most of the food and drink I put in his mouth just ran out again. For three months, I struggled to keep him alive and he then only weighed 2kg, which was even less than his birth weight! He would cry a lot, and many times I stayed up most of the night, trying to rock him to sleep.